Changes, Challenges and Chuckles!

So life continues, diagnosis with what everyone classes a killer disease, what do I do? Do I accept the prognosis, the sentence placed upon me or do I fight on? To my mind, knowledge is power and I need a lot of power. The Internet became my closest friend, I searched every possible page for all the information I could find, but there was so much negative out there and I didn't want that, so I changed my tactics.

I decided I was going to research what I needed should the disease progress, put everything into place in case the day came when I would need a wheelchair and more! I saw a speech pathologist, psychologist, nutritionist and surgeon. After checking out the medical aspect, I then checked into the legal matters as well as researching medical aids and equipment.
During this time I commenced the "intragam" infusions! Five months on and I feel, although the disease has progressed, my overall health is good...so I will continue while Dr S feels it is worth doing so.

August came quickly and I took delivery of my wheelchairs! Yep plural....I have my regular wheels for indoor/outdoor and my truck for the beach and bush!

So let's lighten these blogs....my first outing by myself in my wheelchair. I spent the morning at my Friday Ladies Cafe at Citilife then decided to wheel down to the College to say hello to my past work colleagues.

Visit completed I was going to attempt to hit the shops, but first the bathroom....well what a laugh! My friend came with me to open doors....I was able to get myself out of the wheelchair and walk but found the disabled toilet blocked with boxes and other things. No worries normal toilet will do! All good until time to get myself off...oh these toilets are very low! Well in my effort to get up I ended up on the floor and then had visions of the little room filled with men trying to lift me up! No chance, I desperately did everything I could to get my jeans up and then crawled out to the washroom. My friend wanted to help me up but she is rather tiny and not only am I rather large, I am a dead weight!

Trying not to laugh too hard I asked her to find a couple of men to help me up. Well that was it I couldn't help but laugh she found the shortest and the tallest guys around and I thought what will happen now? Ummm well, whilst dangling lopsided we called for more aid to put my feet on the floor, with that Ps P came to the rescue, sorted the chair and my feet and I was soon back in the seat!

"oh how embarrassing!" I exclaimed. "Well aren't you glad you were with friends?" asked Mr W! "More pleased that I got my strides up'" I laughed. "Yes we were worried about that!" he grinned and with that I laughed harder and made a mental note...there is always someone worse off than me....in this case if I hadn't been able to get my strides up........? Those poor guys! ROFL....lol!